Showing posts with label PCVAI. Show all posts
Showing posts with label PCVAI. Show all posts

Thursday, January 8, 2009

Offspring Blog is HERE!!!

IT'S FINALLY HERE!!!

My new blog is up and running so please wander over to Donor Conceived Perspectives and check it out!!

If you are donor conceived and would be interested in contributing, as always send me an email and I'll send you more information!  We are looking for offspring over the age of 15 (under 18, make sure your parents are okay with it please!) who would be willing to share their story, as well as write periodically - every couple months - on anything that strikes your fancy in the DC world.  We are looking for offspring with varying views, ages, locations, and DC stories so there is a well-rounded resource for people looking for the views of donor conceived individuals.

DCP is a public blog, so anyone can post comments, but we will be moderating comments, so please be respectful to everyone.  I will not tolerate abusive comments towards anyone, as many of our authors are just now going public with their stories.

Please feel free to ask the entire group or any individual author questions via blog entries or email.  I will be creating a "Mailbox" soon, so private messages can be sent with questions to the group.  Several of our authors wish to remain semi-anonymous (for a variety of reasons), so there will be a single email inbox for the whole group.  If you wish to contact an individual, please put their name in the subject line.

Thursday, January 1, 2009

HAPPY NEW YEAR!!!

I hope everyone had a safe and happy New Years, and I wish each and every one of you a wonderful 2009!!

My 2009 New Years Resolution (aside from going to the gym everyday..........) is to start a blog for the group People Conceived Via Artificial Insemination (PCVAI).

It has been a concern of mine for some time that there is no public place for donor conceived people, parents, potential parents, and donors to go to talk to many adult offspring at once.  There are the registries (and their forums/groups), but the majority of the people there are parents with little babies, and many offspring feel very uncomfortable being honest in those places because of some of the severe backlash by others.

Adult offspring looking for others like them are often lost in the dark, and parents and potential parents only are able to communicate directly with a few select offspring who make themselves available from blogs or online forums, since the message boards for PCVAI (the ONLY group created by, for, and restricted to donor conceived persons) are closed to the public.

There are currently over 200 members in PCVAI (213 as of today), and the majority of those individuals' stories have never been told.  That is why I want to create a blog, with many donor conceived adults as contributing authors (I already have over a dozen who want to contribute).  Not only will you hear many of the untold stories, but you will get a sense for what is going on around the world in the eyes of the donor conceived, from legislation and advocacy to issues and controversies, and how different individuals react differently to similar (and different) situations.

Please keep your eyes peeled for this new blog in the near future!


ADDENDUM: 

The new blog is Donor Conceived Perspectives: Voices of the Sperm Donor Conceived.  We are still in our infancy (obviously) and I am still inviting offspring to participate and the ones who have signed on so far are busy at home writing their introductions to share with the world!  So far we have 7 offspring for sure (and another 15 who are interested), and they range in age from 17 to 65, male and female, and come from 3 continents.  Please continue to check us out at http://donorconceived.blogspot.com and see how we grow!!

Thursday, June 26, 2008

Letter to Fairfax Cryobank - YOUR HELP IS NEEDED!!

This is the final draft of the letter to Fairfax on behalf of PCVAI in regards to their website.  Please read and endorse it if you agree.  I understand that not every opinion and every point could be made, but if you wish to support this letter please let me know ASAP!!

**********************************

To Whom This May Concern:

On behalf of the group ‘People Conceived Via Artificial Insemination’ I would like to make a retort against the one and only story published on your page for children of DI, entitled The College Essay.  With over 200 adult donor offspring members across the globe, we believe that it is biased and irresponsible to publish only a one-sided essay; and furthermore one that is insulting and demeaning towards the donor-conceived/adoptees who do feel a loss in not being allowed to know their biological roots.

Our first criticism of this story is how the mother worried that her daughter would become a resentful, unhappy adult with psychological issues, as if people who criticize any social problem must not be content.  I would rather my future children be activists who are socially aware and recognize social ills and do something about it than be complacent. If everyone were less critical and judgmental we wouldn’t have such “troubled” people who changed the world, such as Rosa Parks, willing to submit themselves to the deviant labeling from “normal” society in order to act against injustice.

Our second issue with this page is the assumption that offspring should view their conception the same as their parents’ view their infertility, and subsequently that their conception is justified because it gave their parents the “gift” of having a child.  By surrendering our most basic right (to know our roots) to the wants and needs of our parents we have essentially lost any aspect of an autonomous personhood.  Our disgust is that the focus of the page dedicated to answering the questions of the children created through donated gametes sounds more like an advertisement to potential recipients, spotlighting the donor recruitment and screening process and policies, and then flat-out inform any offspring that you will never contact a donor on his or her behalf.  You have completely eradicated the opinion of many offspring, and have corralled donor-conceived offspring into a single self-validating opinion, which implies that anyone who feels otherwise is psychologically troubled.

In the story, Monica’s mother even acknowledges the views of the “vocal minority”, but simply writes them off as troubled and the means of dramatic and sensational journalism.  These instances have been disposed of so Monica has no idea of the “negative views” from many offspring.  It’s as if Monica’s mother is not protecting her children from these views because they won’t need them, but more so because she fears that if they are exposed to these views they might see them as acceptable.  What is essentially being said in this paragraph of the story is that Mom is so fearful that her children might have other feelings, that she must keep her children ignorant of the world in order to justify her own decision, and assuring herself that those who are dissenting must be in the minority and are surely not “well-adjusted and content”.

Our final reaction to this story is that it sounds very sugar-coated, maybe even a piece written on behalf of your PR department as a defensive move to counter the growing voices of dissent from DI adults. For instance, Monica says in her essay that the idea of being donor-conceived is something she rarely thinks about and it often slips her mind, however she makes it the focus of her college essay.  An offspring who was truly ‘content’ with his or her conception I doubt would bring the subject up at all.  On the flip side, as a graduate student studying genetics, I have personally used being donor conceived on many graduate program personal statements as it’s an interesting anecdote about how I became interested in the field; however I used it because being donor conceived IS something I think about and it HAS affected me in numerous ways.

As donor-conceived adults we feel that even if this truly is how Monica sees her conception, it is only perpetuating the status quo established by the infertility industry and negating the legitimate criticisms many of us have been trying to voice.  It also only shows one person’s reaction towards his or her infertility, one that describes using donor gametes as a “cure” without acknowledging that only masks the symptoms, leaving behind it life-long consequences for everyone involved: the offspring who has lost his or her biological father, half-siblings, aunts, uncles, and grandparents, the social father who often sees this child as a constant reminder of his weakness, the donor who has no opportunity to even know of the children he creates, and the mother who may feel threatened by a child who has their own opinions.  While we are not trying to downscale the impact of infertility on a person, we feel that alternatives to using donor gametes should also be discussed in order to give potential clients the most accurate and unbiased education, including but not limited to pre-conception counseling and testimonies which encompass all viewpoints. 

Many of the members of PCVAI have their own children and even grandchildren, and while each of us are happy and productive members of society, many of us feel that if we could go back in time, we would tell our mother to not use a sperm donor to become pregnant.  Many of us have contemplated or even dealt with infertility ourselves, but we would not choose to use a donor if such a circumstance should arise.  As the individuals who are affected the most by assisted reproduction, we understand the impact and loss associated with these endeavors and above anyone else our views should be the most important in recipient parents as well as the infertility industry’s decisions.

As a group we feel that it is of paramount importance that the differing viewpoints of adult donor-conceived persons be represented, and that no one side be legitimatized simply because it validates your product.  It is very peculiar that as a page that is supposedly focused to the donor offspring that the only story published is one that discounts the views of other offspring, and is not even written by an offspring.  The current information and story only serve to embarrass and chastise a donor-conceived person who feels anything less than happy and grateful, humiliating us into silence.

 

Sincerely,

Lindsay ---------- , Donor-Conceived

Monday, June 23, 2008

Fairfax Letter of Complaint

This is the first draft of the letter to Fairfax on behalf of PCVAI.  Please endorse it and/or give me feedback or ideas.

***************************

To Whom This May Concern:

On behalf of the group ‘People Conceived Via Artificial Insemination’ I would like to make a retort against the one and only story published on your page for children of DI, entitled “The College Essay”.  With over 200 adult donor offspring members across the globe, we believe that it is biased and irresponsible to publish only a one-sided essay; and furthermore one that is insulting and demeaning towards the donor-conceived/adoptees who do feel a loss in not being allowed to know their biological roots.

Our first reaction to this story is that it sounds very fabricated, that it is likely a piece written by your PR department as a defensive move to counter the growing voices of dissent from DI adults. For instance, Monica says in her essay that the idea of being donor-conceived is something she rarely thinks about and it often slips her mind, however she makes it the focus of her college essay.  An offspring who was truly ‘content’ with his or her conception I doubt would bring the subject up at all. 

On the flip side, as a graduate student studying genetics, I have personally used being donor conceived on many graduate program personal statements as it’s an interesting anecdote about how I became interested in the field; however I used it because being donor conceived IS something I think about and it HAS affected me in numerous ways. 

Our second criticism of this story is how the mother worried that her daughter would become a resentful, unhappy adult with psychological issues, as if people who criticize any social problem must not be content.  I would rather be an activist who is socially aware and recognizes social ills and does something about it than be complacent. If everyone were less critical and judgmental we wouldn’t have such “troubled” people who changed the world, such as Rosa Parks, willing to submit themselves to the deviant labeling from “normal” society in order to act against injustice.

Our third issue with this page is the assumption that offspring should view their conception the same as their parents’ view their infertility, and subsequently that their conception is justified because it gave their parents the “gift” of having a child.  By surrendering our most basic right to the wants and needs of our parents we have essentially lost any aspect of an autonomous personhood.  Our disgust is that the focus of the page dedicated to answering the questions of the children created through donated gametes sounds more like an advertisement to potential recipients, spotlighting the donor recruitment and screening process and policies, and then flat-out inform any offspring that you will never contact a donor on his or her behalf.  You have completely eradicated the opinion of many offspring, and have corralled donor-conceived offspring into a single self-validating opinion, which implies that anyone who feels otherwise is psychologically troubled.

In the story, Monica’s mother even acknowledges the views of the “vocal minority”, but simply writes them off as troubled and the means of dramatic and sensational journalism.  These instances have been disposed of so Monica has no idea of the “negative views” from many offspring.  It’s as if Monica’s mother is not protecting her children from these views because they won’t need them, but more so because she fears that if they are exposed to these views they might see them as acceptable.  What is essentially being said in this paragraph of the story is that Mom is so fearful that her children might have other feelings, that she must keep her children ignorant of the world in order to justify her own decision, and assuring herself that those who are dissenting must be in the minority and are surely not “well-adjusted and content”.   

As a group we feel that it is of paramount importance that the differing viewpoints of adult donor-conceived persons be represented, and that no one side be legitimatized simply because it validates their product.  It is very peculiar that as a page that is supposedly focused to the donor offspring that the only story published is one that discounts the views of other offspring, and is not even written by an offspring.  The current information and story only serve to embarrass and chastise a donor-conceived person who feels anything less than happy and grateful, humiliating us into silence.


Sincerely,

Lindsay ------------, Donor-Conceived, Cleveland, Ohio

People Conceived Via Artificial Insemination

Friday, June 20, 2008

Fairfax's bogus DC story infuriates adult offspring

A recent discussion on PCVAI was in response to the posting of a supposed story on Fairfax’s website from mother about her child’s view on being donor-conceived (ironically the ONLY story posted on their section entitled ‘Children of DI’, and it’s not even from an offspring!!).

They also add this for offspring: "As a child or adult conceived with the use of donor sperm, you may have many questions.  We would like to help you answer some of them by sharing some of the details about how our sperm banks selects donors, offers donor sperm to women and couples, and handles requests for information about donors."

This could not be more of an insult - I don't give a rat's ass about how they select donors or sell sperm, and god only knows if all they can tell me is that they will never give any information to offspring, what kind of "help" is that?!?!  That doesn't answer a single goddamn question I have!!!  Fairfax, you are so irresponsible and reckless that you should never sell a vial of sperm ever again out of your complete disdain for the children created by your company!

*****************************

The College Essay

My daughter, Monica, is applying to colleges. Like her older brother, she will soon be going out into the world.  Where has the time gone?  Wasn’t it just yesterday that we received a diagnosis of severe male factor infertility and we were faced with making the decision as to how our family would be built?

When we began our infertility journey and joined RESOLVE in 1983, our focus was on pregnancy and babies.  We couldn’t even imagine this far ahead in time, when our children would be making decisions about college.  But we did have fears about the future.

We choose donor insemination (DI) to build our family, and much later continued our family building efforts through donor egg and intracytoplasmic sperm injection (ICSI).  Although a support group helped ease some of the isolation we felt, we didn’t know anyone who had taken this same route to parenthood. We had no idea what the future might hold.  What if our child someday resented how s/he had been conceived?  What if s/he grew into an unhappy adult with psychological issues?

‘Mom, can you proofread my college essay before I send it out?”  Monica asked me, bringing me back to reality.  “The application said to write 250 words or less on the theme, tell us about the world you come from,” she continued, offering me her seat in front of the computer.  With her standing beside me, I began reading:

“The world I come from is ordinary, comfortable and stable.  I have two normal parents and I’m cushioned between two brothers, one younger, one older.  On the outside we are a traditional American family.  When I talk about family, I always refer to them as normal, loving people who are always there for me.  I often forget, however, that we are not ordinary.

Our family is different because both our parents had infertility issues.  My brothers and I were all conceived with the use of donor gametes.  Although my brothers and I were born with the aid of donors, it doesn’t matter.  In fact I rarely think about it and it always seems to slip my mind.

While others may be solely dependent on external validation, I have learned that life is not just about how you appear on the outside and how people view you.  I have grown up open-minded.  I believe that I am less critical and judgmental than other people because I know that things on the outside are not always what they seem.  I understand that things that are different should not be feared and deserve acceptance that ordinary situations receive."

“What do you think?” she asked eagerly.

“It’s fabulous.  It’s wonderful how open and positive you are,” I said, blinking back tears.

“Why shouldn’t I be?” she asked.

“Some individuals conceived using donor gametes have issues,” I told her.

“Why would they have issues?” she wanted to know.

When we began our journey to create a family over two decades ago, we were told by the medical community not to reveal the method of conception to any resulting children.  This advice was accepted by 95% of couples utilizing DI at the time.  I found this recommendation odd, considering the history of disclosure in the adoption community and the negative consequences of withholding information.  But DI was way behind the social advances and acceptance of adoption, and still is.  There was never any doubt that we would tell our children from the beginning, though we proceeded with some trepidation.  There was no one to guide us. We felt like trailblazers.

As our children grew, stories began cropping up in newspapers, magazines and online bulletin boards featuring troubled donor-conceived individuals.  Monica knew nothing of these negative views of donor conception, because I had tried to shield her, cutting out and disposing of these articles so she and her brothers wouldn’t read them.  I hoped that those stories represented a vocal minority and assumed that individuals who didn’t have an issue with how they were conceived would have no need to talk to the media.  Even if they did, well-adjusted and content individuals wouldn’t make for very dramatic or sensational journalism.

Now that I read Monica’s essay, I finally realized that I could let go of the fears.  There was nothing to shield her from anymore.

“Why would someone have issues because of how they were conceived?” Monica asked me again.

“Some people don’t view things the way you do, honey,” I said.

Monica looked puzzled, and then shrugged her shoulders.

I now understand that her perception of her conception history was a mirror of how I viewed my infertility experience. We both saw it as something that enriched our lives.

Our children are a gift, created from a gift, and as they venture away from home, they are our gift to the world.

The author is a RESOLVE member and volunteer.

********************************

After reading this story several points come to mind that make me (and many others in PCVAI) believe that Fairfax’s PR department wrote this story and Monica and her mother do not exist.  This story was simply written to counter the growing number of adult offspring who are voicing opinions which do not agree with the current status quo.

First off, Monica says in her essay that the idea of being donor conceived is something she rarely thinks about and it often slips her mind, however she makes it the focus of her college essay.  An offspring who was truly ‘content’ with his or her conception I would doubt to bring the subject up.  On the flip side, I know I’ve used being donor-conceived on graduate program personal statements and cover letters since I’m in the field of genetics – it’s an interesting anecdote about why I’m interested in genetics (and people definitely remember me!); but I use it because being donor-conceived IS something that I think about and it HAS affected me in numerous ways.

Secondly, the claim that the section is specifically for the views of donor offspring but this is the only story presented also lends to the fact that Fairfax is discounting and insulting those of us who feel the way we do simply to validate clients to continue to use donated gametes with the pretension that offspring are happy and content.

Thirdly, there is the insinuation that we are the “vocal minority” and that we must have psychological issues because of how we feel, going as far as calling us troubled, and that the only reason why our stories are featured are because it’s more for the sensationalism of journalism than the truth. 

The final thought was that “well-adjusted” offspring should view their conception exactly as their parents view their infertility, and thus condone the process because it was  “cure” for their parents’ infertility and it “enriched” their lives and therefore must enrich the offspring’s life as well. 

I’m sorry; I just don’t buy it at all.  It’s complete and utter bullshit coming straight from the infertility industry bastards who continue to ruin our lives. 

Fairfax has never been my “favorite sperm bank” for it’s antiquated policies and complete disregard for the children they create, but this brainwashing has gone too far.  They are dirty liars who don’t care about the children, and probably don’t even care about the recipient parents, since they aren’t doing them the decency to give them at least both sides of the story. 

I am in the process of writing a formal complaint letter to Fairfax on behalf of PCVAI.  Anyone who would also like to add his or her name/organization to this letter please email me.

Friday, March 7, 2008

Fertility clinic fires and other strange but [un]true answers

A recent discussion that started on PCVAI a few weeks back was on the astounding number of office fires in which donor conceived persons records were destroyed across the globe.  I am not joking – really I’m not.  Apparently insurance costs must be through the roof for fertility clinics these days, as they seem to be at an abnormally high risk of office fires!  Okay…so you’re laughing now, right?  But I’m being brutally serious when I say that the number of DC adults who have confronted the fertility clinics their moms used only to be told that the information they are requesting was destroyed [insert random # of years here] ago and there is no records left from that long ago.  I have heard just about every excuse in the book, from office fires, to floods, to the doctor sold his practice and the records were lost, to [insert random bullshit here].

Now myself on the other hand, was not told that there was an office fire at Xytex, I was simply informed that records of orders placed were destroyed after 10 years…in my head I am picturing a long conveyer belt with records chugging along and as soon as they’ve been around for 10 years they drop off the edge into the infinite abyss of biological disconnectedness!  Since at the time I had no donor number I was back to square one.  I still am unsure if I believe this explanation or not.  Luckily however, being a large international sperm bank they still had records of their donors.  By finding the donor number in my mother’s medical records I was able to phone Xytex and the secretary sent me non-identifying information and his (at the time of donation) medical history.  It’s only been a month since I’ve had this information and even now I still feel that it’s surreal and I’m going to wake up and be back to having no information.  I do have his birthday, yet I have no clue where he was born or much else to go from there.

I guess my confusion is how they can turn such a blind eye towards our questions!  They claim that the donors WANT anonymity, however most donors weren’t even given an option of being open-ID before about the late 1980s!  It does not surprise me though, as the infertility industry seems stuck on voicing others opinions for them, only to continue their delusion that affirms their entire business practice.  It is as if they follow the old saying “children should be seen and not heard”, however they seem to deny that donor conceived children ever actually grow up!!  To them I am a mere child who cannot make a reasoned decision on my own, and therefore they are required to make that decision for me, which according to them is in my ‘best interests’.

At the end of this month there is a conference being held in Chicago to discuss the means of a voluntary national registry: 


********************************************

TRACKING CHANGE: THE FEASIBILITY OF A VOLUNTARY GAMETE DONOR REGISTRY IN THE UNITED STATES

March 28, 2008. 9:00am - 5:00pm

University Club, Michigan Room, 76 East Monroe St, Chicago, Illinois

Open to academic, clinical, and public participants.

http://www.law.depaul.edu/centers_institutes/health_law/tracking_change.asp

Concerns regarding secrecy in the use of donor gametes have led to recent regulatory responses in a number of European nations and Australia. The United States, however, greatly concerned with potential infringement on reproductive rights and autonomy of participants, continues to lag behind in formulating a uniform national response. Instead, piecemeal solutions have been implemented by individual sperm banks, consumer groups and for-profit entities that seek to keep gamete recipients updated on significant health conditions of the donor or to match donor offspring with other genetically related donor offspring. These lay registries have emerged without public discourse, public accountability, multidisciplinary expertise, uniformity or oversight. As legislative proposals begin to emerge in the United States, the time is ripe for professionals most directly impacted by the creation of such registries to take the lead in the discussion and develop a feasible, acceptable and effective solution to benefit the full range of stakeholders.

Developing a single effective registry requires balancing the interests of the child, donor, intended parents, health care professionals and society.

In addition, conducting a risk/benefit analysis is necessary to protect, promote and enhance this important reproductive option and ensure the physical and emotional safety and privacy of all participants, including the resultant offspring. 

Proposed benefits of creating a voluntary gamete donor registry centralized within the reproductive medicine community include:

* Collecting and maintaining pertinent medical, health and genetic information

* Helping avoid identity issues or familial disconnect experienced by some children

* Preventing inadvertent consanguinity and enabling offspring to make informed reproductive decisions

* Enabling Assisted Reproductive Technology programs to share donor information with one another

* Ensuring that donors do not participate in multiple programs or more times than is medically and/or psychologically recommended

* Facilitating outcomes/epidemiological research that is currently lacking despite the thousands of births annually utilizing donated gametes in the United States

Tracking Change will explore the feasibility of creating a uniform voluntary gamete donor registry in the United States. Using a multidisciplinary approach, expert panelists will discuss the practical, theoretical, and ethical benefits and barriers of developing and implementing a registry with a particular focus on legal and policy considerations. The issues will be discussed from the perspectives of a range of stakeholders, including physicians, fertility centers, sperm banks, donor gamete recipients, donors, donor gamete offspring and society.

***********************************************

At first glance this conference sounds like an uplifting change to the current system in America, however after careful reading of the list of speakers (see conference website) you realize that once again the children are the last priority, and again the infertility industry is speaking on our behalf.  There is not a single offspring or donor asked to be in attendance – that is unethical in regards to holding a meaningful symposium on a possible national registry!!  When a donor offspring asked the conference planners if a donor offspring could attend and sit on a panel she was firmly rejected and told they did not have the finances to have another panelist and a professional in the field was speaking on our behalf.  That is absolutely ridiculous as we are no doubt the most important stakeholders in this endeavor!!  Again the offspring have been ousted and a “professional” is speaking about OUR feelings!  I can be sure that the professionals who are speaking for our interests are most definitely just martinets of the infertility industry and giving the impressions they wish to extend (ie, offspring who are well-adjusted and happy have no issues with missing links in their identity!!).

Considering donor insemination has been a “cure” for infertility since the 1880’s, the excuse that the offspring are only children and haven’t the ability to speak for ourselves is a ridiculous and a downright wrong assertion.  We are grown adults and our points of view should matter, as we are the ones who have to deal with the consequences of these unchecked assisted reproduction practices!