So I took my final exam this afternoon and I've put the finishing touches on my practicum binder, and Lindsay is finally done with her masters degree!!! I technically graduate on Saturday, but I'm playing hookey instead of going to commencement!! Actually, my momma and I have our last run of the year as elves on the Polar Express, and it's the night all our friends and their children are coming (and some kids I babysit for), so I think we have about 1/4 of the our car filled with "our people" so it's gonna be a BLAST!! I will be sure to post pics soon!
What happens when artificially created bundles of joy begin to speak for themselves? Revolt! I'm a product of an anonymous sperm donor and now that I'm an adult I'm searching for answers and speaking out. And this is my story...
Tuesday, December 15, 2009
DONE WITH GRADUATE SCHOOL!!!
So I took my final exam this afternoon and I've put the finishing touches on my practicum binder, and Lindsay is finally done with her masters degree!!! I technically graduate on Saturday, but I'm playing hookey instead of going to commencement!! Actually, my momma and I have our last run of the year as elves on the Polar Express, and it's the night all our friends and their children are coming (and some kids I babysit for), so I think we have about 1/4 of the our car filled with "our people" so it's gonna be a BLAST!! I will be sure to post pics soon!
Tuesday, December 1, 2009
Return defective donor children. Money-back guarantee!
In April, 2009, a New York Federal judge ruled that sperm banks can be sued under product liability laws for failing to detect that a sperm donor has a genetic defect. The case clears the way for a 13 year-old retarded girl from PA. to sue New York-based IDANT[1] using sperm with a mutation known as “Fragile X”[2] which caused her to be born mentally retarded.So, if human sperm is officially a product, what does that make the child born via donor insemination? In the future, will parents be able to return their children to the cryo bank if the child does not meet the parent’s specifications, you know, if the child’s not blonde enough or not good enough on the violin? When is that going to start happening?In the absence of any significant federal or state regulation of the Cryo banking industry the threat of lawsuit is a very good thing. But, consider this: this isn’t exactly like a consumer being sold a faulty product, who is somehow injures and then seeks a claim; this is the faulty product itself suing the company that made it (in this case, a her). I don’t think this has happened before. Ever. Imagine a single Toyota Prius suing Toyota for assembling its breaks incorrectly![1] Owned by the DAXOR CORPORATION. You’ve really got to see their website: http://www.idant.com/ All it needs is some ‘80s David Cronenberg-esque analogue synthesizer and we’re all set. No but seriously. Who would by human semen from a company called IDANT who proudly proclaims: owned by the DAXOR CORPORATION? Also, my life might be at risk for writing this footnote.[2] No, I’m not making this up.
Thursday, November 26, 2009
Happy Thanksgiving...oh yeah, and be grateful to have been born
- We are told that our parents' medical or social infertility is a terrible thing and that they wanted us so much that they used a special person to help have us!
- We are told that we should not need our biological parent and that loves makes a family! Despite the fact that our parent(s) chose donor conception over adoption so they could have at least a partially genetically-related child, we are told that genetics are not important and that it's the person that changes our diapers that is the real parent.
- We are made to feel as though we hold the weight of our parents' infertility pain, and that that pain is far superior to any pain that we could possibly ever have, and thus we must be happy with our perfect lives.
- We are informed of the immense costs involved in IVF and ART and that we were very expensive children to conceive and thus must be more loved and more special than any other child.
- We are made to feel excessive guilt if we even THINK that we would want to know our biological parent.
- We are taught to love our social parents so much that we could not even think of possibly hurting them to find our biological family.
Monday, November 23, 2009
The search for a sperm-donor father
Monday, November 16, 2009
Even more about DNA half-siblingship tests
Wednesday, November 11, 2009
Find half-siblings through NEW DNA database
Exciting news today to report........
A bit more about the combined siblingship indexes:The combined siblingship index is a series of special equations (that Damian and I cracked) that take into account the frequency of different loci's alleles in the general population. Basically, this means that some alleles are VERY common, say 50% of the general population. That means if two potential siblings share this allele it does not mean much, and receives a very low index.Compare this to an allele that is very rare in the population, say 0.03 (only 3 out of 100 people have this allele). In this case, the index would be a larger number because the chances of two unrelated individuals sharing this allele is more unlikely, and the chances of two people who share this allele being related increases. Remember, we inherit one allele from each parent.So, on a 15-loci DNA test, each of the 15 loci that have an allele that is shared, that index is going to be greater than 0.5 (often around 1.5-5.0 on average), and for loci that there is no allele shared the index stays at 0.5. This is because there is a 50% prior probability. The indexes for each loci are then multiplied together and that forms the combined siblingship index.1.0 is the threshold. This means that anything below 1.0 is conclusive that there is non-relatedness between the two individuals. Anything that breaks the 1.0 combined siblingship index means it SUGGESTS relatedness, with the higher the index the more likely it is that the two individuals are actually related. I say suggests because half-siblingship tests cannot be 100% conclusive. Half-siblings share 25% of their DNA, so on a 15-loci DNA test with two alleles at each loci, that means that half-siblings share on average one allele on only 7-8 loci!!! This is why, unlike paternity tests where a child must have an allele present that matches one of the alleged fathers at EVERY loci, these frequencies and special equations are IMPERATIVE!!It is also imperative to have mother's DNA samples as well if at ALL possible, as it excludes which allele came from her, and thus increases the index for an allele that matches if it HAD to have come from the alleged shared father.
Wednesday, October 21, 2009
The case for genetic testing and updated medical records
JAMA. 2009;302(15):1681-1684.
Context Sperm donation is an increasingly common practice for achieving pregnancy in the absence of a male partner or when fertility is problematic. The unintended consequence in which genetic diseases are unwittingly transmitted to offspring is an underrecognized public health issue not previously prioritized by US Food and Drug Administration guidelines.
Objective To report the clinical circumstances and implication of hypertrophic cardiomyopathy (HCM) transmitted by sperm donation to recipients.
Setting Voluntary sperm donation through a US Food and Drug Administration–approved tissue bank.
Main Outcome Measure Incidence of genetically affected offspring and clinical outcomes to date.
Results An asymptomatic 23-year-old man who had no personal knowledge of underlying heart disease and who underwent standard testing that was negative for infectious diseases, repeatedly donated sperm over a 2-year period (1990-1991). The donor was later shown to be affected (in 2005) by a novel β-myosin heavy-chain mutation that caused HCM, after an offspring wasclinically diagnosed with this disease. Of the 24 children known to be offspring of the donor, including 22 who were products of fertilization via sperm donation and 2 conceived by the donor's wife, a total of 9 genetically affected offspring, 2 to 16 years of age and 6 males, have been identified with HCM (2005-2009). Three of the 9 gene-positive children have currently expressed phenotypic evidence of HCM, including one who died at age 2 years due to progressive and unrelenting heart failure with marked hypertrophy, and also 2 survivors with extreme left ventricular hypertrophy at age 15 years. The latter 2 children and the donor are judged likely to be at increased risk for sudden death.
Conclusions This case series underscores the potential risk for transmission of inherited cardiovascular diseases through voluntary sperm donation, a problem largely unappreciated by the medical community and agencies regulating tissue donation.Recommendations include improved screening guidelines for donors to exclude cardiovascular diseases (eg, HCM) such as consideration for 12-lead electrocardiograms.
“While the US Food and Drug Administration (FDA) inspects the operation of the banks and screening procedures for donors, this process has been directed primarily toward the prevention of infectious diseases, with little attention to the potential transmission of genetic diseases.”“This case underscores the potential risk for transmission of inherited cardiovascular diseases through voluntary sperm donation, a problem largely unappreciated by the medical community and agencies regulating tissue donation.” The article goes on to say, “We are aware of only one other documented instance in which a genetic disease was transmitted to an offspring by sperm donation”.
Saturday, October 10, 2009
Boston = an unfriendly place for donor offspring
A DISGUSTING editorial out of the Boston Globe today calls for STRICT ANONYMITY for donors! This just makes me sick........
"Supreme Judicial Court Justice James McHugh, addressing the case of a mother seeking the identity of a sperm donor in order to obtain child support and genetic information, was right to call upon the Legislature to clarify these issues. The Legislature would be deeply remiss to allow a situation with such broad implications to be addressed through a patchwork of legal opinions. The state must act now to avoid uncertainty - and to preserve a fertility system that has worked well for the majority of those involved.""Any legislation must use as its starting point the reasonable terms - including a strong ethos of anonymity - under which all the parties entered into their arrangements, while imposing new common-sense requirements that address complications that may never have been envisioned when sperm and egg donations first became possible. A fair system of laws would impose some restrictions on all parties to the donation process.""Children born under this system will have a natural curiosity about their biological roots. For some, the curiosity could take on the force of an impassioned search for identity. But such quests emerge from many types of families, of all configurations, and often reach frustrating dead ends. While recognizing the desires of children to know all aspects of their backgrounds, the state should nonetheless ensure that the identities of sperm or egg donors remain such a dead end. A breach in the wall of privacy under any but the most dire circumstances could jeopardize the whole fertility system. The greater good is clearly in encouraging the participation of informed donors and preserving their anonymity.""Fertility advances have served to strengthen the bonds of parenthood and to extend the joy of family life. Anonymous donations have made many advances possible, and Massachusetts must do all it can to bolster a successful system. The happiness of thousands of families, and perhaps millions of children yet to be conceived, depend on it."
Tuesday, October 6, 2009
Comment of former sperm donor sparks outrage
For those not familiar with Jane Doe's litigation, she is a single mother of twin girls, conceived by Donor D237 of New England Cryogenic Center (NECC) in 2000. Her daughters were born with potentially fatal health concerns and have had expensive and intensive medical treatments since their birth. It's been assumed that the girls inherited the conditions from their biological father, D237.
Jane Doe is filing a lawsuit in the state of Massachusetts for donor D237's medical records and his identity for her young daughters. She argues that NECC had informed her that donor D237 was willing to contact her daughters if she wanted a relationship. Now NECC is claiming that such statements were never said and that the donor is assured full confidentiality, including his medical records.
After the Boston Herald reported her lawsuit she sent the Boston Herald her response about her desperate attempt to provide some comfort for her little girls.
Most of the responses are hostile towards Doe and are from the obviously ignorant and uninformed masses of America. One poster in particular (thank you Karen for enlightening me to this) is a former donor from an unspecified bank.
TO RECIPIENT PARENTS AND THOSE TRYING TO CONCEIVE....BEWARE!!!!
These donors do NOT care about your children, or their health and well-being. The idea of an altruistic donor is a load of bullshit --- a donor who donated to "help" infertile couples would be concerned about the health of the children he creates, even if he wants to remain anonymous. Any donor who refuses to provide updated medical information is NOT an altruistic donor, and is NOT the kind of donor you want to create your children with!!!
Here are a few snippets of the comments of this anonymous donor:
"I was a donor for several years and according to a certain website I have more than ten offspring. (I'm not saying how many more) A couple of years ago I found out that I have a slow onset incurable disease that half of my offspring will inherit. I did consider telling the sperm bank but my wife was unhappy babout me doing so since the disease is quite rare and she was worried that our identity might be disclosed from our involvement in support groups."
"Although I am not happy that I may have passed down this disease to my offspring, I don't feel any responsibility for it. Overall I believe that my privacy is more important than notifying families that conceived through me and the law recognizes that with my privacy being constitutionally protected."
"My wife and I are also going through the stress of considering what to do about starting our own family. We want to ensure that any children we have are not affected by the disease. Ironically enough our doctor suggested using donor sperm. You couldn't imagine our response to that. We both said NO simultaneously."
"I do not feel that my offspring are my children. They share some of my genetic code, and some also share the disease bit of my genetic code, but that does not make them my children. Their parents are the ones raising them and the only ones responsible for them both financially and medically."
"I want to ensure that any child of MINE is healthy and that is why my wife and I are going to do pre-implantation diagnosis which is a very expensive form of IVF and not covered by insurance to ensure OUR children can be born disease free."
I am completely and uttlerly outraged by this donors comments, and if anything I think this PROVES why anonymity needs to be abolished!! If these men can donor sperm and cause so much pain to their BIOLOGICAL CHILDREN and to the families that they wanted to HELP, then the system as it currently stands is doomed.
Also remember that most donors are college students who need extra money. Having been a college student myself I know the mindset of 18-22 year old males. It's irresponsible and self-serving. They will LIE, CHEAT, and STEAL their way to making a quick buck --- especially if it involves something they enjoy! And lets face it, I couldn't find a single college guy who wouldn't want to get paid to jack off.
There are supposed regulations on donors, but they don't care. So long as they pass through the minimal tests for things like HIV, Tay Sachs, and a handful of others, and have a high sperm count, they are scotch free. They could care less if all the women in their family had breast cancer, or that all the men died at age 40 of heart attacks. If they're smart and want the money they will not reveal that information.
If an anonymous donor feels the way the above-mentioned one feels, and he publicly announces his cruel intentions, there are hundreds and possibly even thousands of others out there that are keeping their traps shut.
It is the behavior of this donor that will inevitably bring the end of anonymity in the US. Recipient parents and those TTC will not have it any other way. Yes, the sperm banks could care less. They want as many donors as they can get so they can make more money. They don't care about the children they are creating either. But the donors should care, at least enough to provide their biological children they sold the opportunity to know in advance of incurable inherited diseases that may strike them or their own children later.
If you are a recipient parent or are trying to conceive, this could potentially be YOUR DONOR, and your children could potentially be carrying the genes for fatal disease, and you won't even know what hit you until they are DEAD. Please speak up against this happening to more children!!! Talk to your congressmen, go to the media....support Jane Doe's fight for access to her donor's medical records, and his identity for the sake of her ill children --- not just for her children, but for all donor conceived children across the United States and the world! Do it for your own children!!
Sunday, October 4, 2009
Another new donor-conceived blogger!!
"I suspect the identity of the “true” biological father was kept secret for three reasons: 1) It was initially kept secret from both the husband and wife to protect Dr. Pancoast and his students from recriminations in case the merchant and/or his wife found their decision to inseminate her to be dishonorable or criminal; 2) The husband wanted to protect his wife from the potential shame of knowing she’d been inseminated, unknowingly, while passed out, by an anonymous man and; 3) Not wishing to lose face in his wife’s eyes the husband did not want his wife to know that he was incapable of impregnating her. In any case, the chief motivating factor in maintaining donor anonymity in this first ever use of human DI in the U.S. was - unambiguously – fear; each actor in the scenario was afraid that what they had done might be perceived as wrong and sought to protect themselves from wrongdoing by cloaking themselves in secrecy."
"In the absence of any federal or state legislation since 1884, the decisions made by Dr. Pancoast and his six anonymous students have, remarkably, set the standards for a medical practice that has become increasingly common and even, in the past few decades, highly commodified."And my personal favorite:
Celebrating 125 years of Donor Insemination!Creating Life and Avoiding Responsibility!
Saturday, September 26, 2009
Journey into the Bubble
Friday, September 25, 2009
Embryo mixup woman gives birth
Thursday, September 24, 2009
Long lost siblings reunite with missing sister
I saw this on the TODAY show and now I hear that they did in fact find the second half-sister!! This adoption reunion story is just too amazing to not post here. Brothers worked together for several months before realizing they were brothers. Their half-sister's fiance sees them on a local station in Maine, tells his fiancee that he saw her brothers and she goes to the furniture store they worked at and they reunite. And now.....while the three were on the TODAY Show their other half-sister in Florida saw them and all four are now reunited! It turned out that the two girls actually went to school with each other, and the one was told not to tell the other they were sisters. Now they are all reunited as family. A beautiful story, but at the same time heartbreaking that these four lost their childhoods and early adulthoods knowing and growing up with each other.
Visit msnbc.com for Breaking News, World News, and News about the Economy
Monday, September 21, 2009
Lots of updates in the DC community
What I don't quite understand is why it follows that the label "donor" is unacceptable. But accepting that it is, would "progenitor" or "forebear" (if that's how you spell it) be better? I would be content with either of those.If neither of those work does it have to include the word "father" and if so, why?
Sunday, August 2, 2009
Seeking USA offspring for study on searching
I am conducting research about the search experience of sperm donor offspring who search for information about their donor and/or genetic origins. Currently, there is little research available about the search experience of populations to which the search process is deeply meaningful and can have a lifelong impact. In addition, there is even less research available about the characteristics of a sperm donor offspring search for genetic information. It is expected that findings from this study will inform the information science community about the nature of deeply meaningful search as well as all individuals involved with donor insemination.As many members of the listserv are sperm donor offspring, I hope that some of you will considering being interviewed for my study. To qualify for the study, you must be a donor offspring in the United States who is currently residing in the United States and has conducted a search or are currently conducting a search for information about your donor and/or your genetic origins and are 18 years of age or older. If you volunteer for the study, I will correspond with you over email and ask you a few screening questions in order to obtain a representative sample. If you move forward from there I will send you more detailed information about the study and if you agree, we will schedule a time for the 60 minute phone interview; you will not incur any charges from calling me. With your permission, the interview will be audiorecorded. My goal is to interview 10-20 sperm donor offspring who have searched for information about their genetic origins and that have been searching for different lengths of time. Know that I am also a donor offspring and understand the sensitive nature of this information for some people. I believe that what I learn from this research can assist other donor offspring as they search for information about their genetic heritage and/or their donor. As a thank you for participating, you will receive a $10 amazon.com giftcard.
Wednesday, July 1, 2009
Blogosphere orphans
Tuesday, June 30, 2009
A letter to Prince Michael, Paris, and "Blanket" Jackson
Monday, June 29, 2009
End of Anonymity: Is just knowing a name enough? (Re: Michael Jackson's children)
"I cannot believe that Michael Jackson is dead. I'm still in shock. While he was alive there has been little media coverage on his children. They were always covered by either masks or veils and the public was left to wonder, do they look like their father? Who is their mother?My parents used an anonymous 'sperm donor' to conceive me back in the mid 1960's and I've been involved in advocating for the identity rights of those conceived from the same method of conception as myself for the past 5-6 years. I and others, want to see an end to anonymous 'sperm/egg donations/vending' and 'traditional surrogacy'.Since Michael Jackson's passing, if you Google search "sperm donor" you will find numerous articles on the nature of his children's conception. Did Michael Jackson use a 'sperm donor' and/or 'egg donor' and/or 'surrogate' to bring his children into the world?I haven't seen pictures of his children until just recently and I have to say, they don't look much like their dad. Regardless, Michael Jackson was their dad. No one is perfect and I haven't ever spoken with his children but I'd bet that they adored him regardless of their biological/non- biological relationship with him. No doubt, they are in profound mourning and will require years to come to full (if ever) acceptance of their loss.I do wonder though if they feel as confused over their 'donor/surrogate' conception as I and many other 'donor' conceived feel? Do they wonder who their genetic father/ mother/ grandparents/ siblings/ cousins/ ancestry/ heritage are? Do they feel a loss?Now that their dad is gone, will they feel more open to explore what their 'donor' conception/surrogac y means to them? Will it take having children of their own to fully explore their feelings and how it relates to their own children to search for more information?I advocate for the end of anonymity in relation to 'sperm/egg' donation/vending and surrogacy, but I also do not think that just knowing a name is enough. I believe everyone does have a responsibility for their own sperm/egg when combined to create a new (out of the womb) life (including 'sperm/egg donors' and 'surrogates' ) that includes more than just identity disclosure â€" and nothing less than open doors and open hearts.Michael Jackson's children are not abandoned by any means but are they genetic orphans? I hope not. No doubt, there are many people willing to be involved and supportive in their lives but is that enough? I hope and pray that their genetic father/mother/ grandparents and extended family have also kept their doors wide open to these children. Love might make a family but we can't just write off genetics and the importance of genetic/biological family. They all matter."
Friday, June 26, 2009
Canadian Donor Conception Coalition Launches Website and Fundraising Campaign to Support First Ever Lawsuit
Thursday, June 25, 2009
Ohio libraries are in jeopardy!!
Sunday, June 21, 2009
Just to be politically correct for Father's Day
Thursday, June 18, 2009
Another new blog! This time an offspring...
In an instant my life changed. Poof, just like that. All I had thought and known changed. This was the day I was told that my Dad was biologically not my Dad. Strange, or was it? Certainly there were differences I noticed growing up and even inquired about, but now in my 40's had let go of the notion. But, it was true. In the wake of tragedy, a family death, the truth was told. As shocking as this was, it was also an "ah ha" moment. I was the offspring of a sperm donor. A med student sperm donor, a different religion than the one I had been brought up in. Who is he? The seach begins.