Warning: Stream of conscious post...

I've been trying to blog now for a couple weeks, a lot on my mind but not a lot of time to put it into coherent sentences -- I love being busy, but after having sans-social life for so long I've forgotten what it's like to work all day and then go out every night with people (also my bank account isn't too happy either!!).  So here it is, Friday night, and I'm chilling with a glass of wine and watching my alma mater Mount Union hopefully win their 11th NCAA DIII National Championship title on ESPN (Edit: the final score was 13-10 Whitewater :o().

Anyways, I guess I'm going to start by mentioning all that has happened this month related to DC...and then perhaps will try to talk about what's on my mind and/or bugging me.

Bill Cordray was in the city for two weeks and I spent several days visiting with him.  We attended the Institute for American Values "State of the Unions" event - I have more to say about this...leads to me another frustration I need to vent off, maybe another day - last Thursday night (I was excited to finally meet Elizabeth Marquardt!), and had a wonderful dinner afterwards with several other donor-conceived adults who also live in the city.  And last weekend Bill and I (and another DC adult, born/raised in NYC but lives in LA, who was back on a work trip for several days) met for brunch with a Japanese researcher who is currently doing a fellowship at Yale studying bioethics and donor conception.  She interviewed Bill and I for an impressive 4 hours at my apartment, and I hope that she not only understood all that we were discussing/debating, but that she learned some things too!!  Thank god for technology, she had 2 state-of-the-art tiny microphone recorders picking up all that we had to say (which was plenty!!).

I was on the subway the other night heading to the Upper East Side, and I'm on the 2 headed to Times Sq and this girl gets on the car and I did a complete double-take.  I could have sworn my half-sister had just stepped on the 2 at 96th....which while possible (as she lives in the city) it seemed highly improbable considering her ventures in Manhattan typically are centered around the East Village so to see her train hopping on the Upper West Side....so after realizing that this girl was NOT my sister -- too long of hair, wrong clothing style -- I shook it off.  Until I get onto the S to head cross-town to Grand Central.  This girl not only gets onto my car but sits right next to me!!!  So now I'm totally spastic and trying to visually analyze this girl without her realize that I'm staring at her.  Luckily the S train is a short shuttle crosstown!

So there's a theory that everyone has a "twin" or doppelgänger somewhere in the world.  These are individuals who are not actually twins, and theoretically not related, who resemble each other in an almost paranormal way.  But what if these supposed "twins" are actually siblings, children/adults conceived from the same sperm donor.  ASRM's guidelines recommend a limit of 25 live births for every 850,000 in the population (and by the way, this guideline was not in place when I was conceived and actually has gotten more stringent in the past couple years).  In NYC, a city of 8.5 million, with this current recommendation, that means I could have 250 siblings in the metro-area alone!!!  The idea that this random girl that I ran into on the subway that looked shockingly like my half-sister, could actually also be my sister....not so impossible.  Especially considering my biological father donated for 7 years.  7 years, 3 times a week, 3-4 vials per sample.....that's A LOT of potential siblings!!!!  And since so many New Yorkers are transplants, it could possibly be even higher since Xytex shipped sperm all over the country.

Living in New York has given me a strange opportunity to be so involved in donor conception...not only are there quite a few DC adults living in the city permanently, but there is a constant flow of visitors from across the country and the world.  It's like when I was studying in Melbourne and so heavily involved in the community there.  It's great, but with it comes a lot of emotions.  I think right now I'm still adjusting to being here.  IMHO, I've adapted quite well.  I have the subways down pat, I now can come out of the subways to street-level and in most cases orient myself within 30 seconds and walk [almost always] the correct way -- except when I walk the correct way and then question my own rationale and change directions only to realize I was in fact going to right way the first time around!!  I'm still hopeless in SoHo, but I'm sure all I need is some extra time down there and rote memorization of the streets.  But at the same time, it's overwhelming.  How you can feel alone in a city of 8 and a half million.  How these random serendipitous occasions occur, like running into an old friend randomly on the street corner.....or coming out of a meeting and calling my mom (who was in town) and asking her what part of the city she was at, and it turns out she's on the opposite side of the street corner on CU main campus. And then there's all the amazing food that I can get at any time day or night, it's like culinary heaven --- craving falafel, you've got it!!  Want thai, they deliver.  I've eaten lamb more in the past month than I think I was treated to in a year previously.....mmmm, now I'm craving shish kebabs.  Not to mention that my stomach isn't tolerating NYC water....or something :-/  But overall I love being here.  I love my job, I love my apartment, and of course I love New York.  :::cue Alicia Keys "Empire State of Mind":::


.......anyways between the wine and my Raiders loss, I'm thinking I'm calling it a night.  I will write more functionally (aka less drunk) this weekend.

Anonymous Father's Day Premier

Jennifer Lahl and The Center for Bioethics and Culture's new film Anonymous Father's Day will be premiering on January 29, 2012 at:


The SoHo Gallery for Digital Art
138 Sullivan Street 
New York, NY 10012 
(212) 228-2810 


There will be two showings of AFD, at 7pm and again at 9pm on the 29th, along with a reception.  The film will be shown throughout the week as will Eggsploitation.

I will be at the January 29th premier, and possibly several other showings.

Below is the schedule of shows:

January 29th  

7pm   Anonymous Father's Day 

9pm   Anonymous Father's Day

January 30th 

5pm   Anonymous Father's Day 

7pm   Eggsploitation 

9pm   Eggsploitation

January 31st 

5pm   Eggsploitation 

7pm   Anonymous Father's Day 

9pm   Eggsploitation

February 1st 

5pm   Eggsploitation 

7pm   Eggsploitation 

9pm   Anonymous Father's Day

February 2nd 

5pm   Eggsploitation 

7pm   Eggsploitation 

9pm   Eggsploitation

Anonymous Father's Day

Jennifer Lahl's (creator of Eggsploitation) new film deals directly with the individuals conceived from anonymous sperm donors.  This is the trailer and the film is going to premier here in NYC on January 29th, 2012.  Stay tuned for more information!

You can follow AFD on Facebook and Twitter.

Holiday Sale from FTDNA!!

Exciting news just announced from Family Tree DNA....they have begun a large scale holiday promotion with their most popular tests on sale for both new customers and current customers (to upgrade).

The sale, unlike all their other sales which are only available for a VERY limited time, is open until the end of the year!  The Family Finder test, the best option for any donor conceived person or former donor, is on sale for $199USD!  This is almost $100 off the regular price.

So, put FTDNA's Family Finder test on your wish list!!

As always, email me if you have any questions or concerns about these tests.

And remember to join the Donor Conceived DNA Project through FTDNA once you've ordered your test!!

New Kits

	Current Group Price	SALE PRICE
Y-DNA 37	$149	$119
Y-DNA 67	$239	$199
mtFullSequence	$299	$239
SuperDNA (Y-DNA67 and FMS)	$518	$438
Family Finder	$289	$199
Family Finder + mtPlus	$438	$318
Family Finder + FMS	$559	$439
Family Finder+ Y-DNA37	$438	$318
Comprehensive (FF + FMS + Y-67)	$797	$627
Upgrades
12-25 Marker	$49	$35
12-37 Marker	$99	$69
12-67 Marker	$189	$148
25-37 Marker	$49	$35
25-67 Marker	$148	$114
37-67 Marker	$99	$79
Family Finder	$289	$199
mtHVR1toMega	$269	$229
mtHVR2toMega	$239	$209

ALL ORDERS MUST BE PLACED AND PAID FOR BY MIDNIGHT DECEMBER 31st 2011 TO RECEIVE THE SALE PRICES. THIS PROMOTION IS NOT VALID IN CONJUNCTION WITH ANY OTHER PROMOTIONS OR COUPONS.

AT THIS TIME, WE WILL NOT BE OFFERING DISCOUNTS FOR THE Y-DNA111, NEW KITS OR UPGRADES. THOSE MAY BE OFFERED AT A LATER TIME PENDING THE LAB VOLUMES WITH THE TESTS UNDER PROMOTION.

We Stand Together

Last week my friend Amanda over at The Declassified Adoptee wrote several posts (here, here, and here) comparing the #OccupyWallStreet movement to that of the Adoption Rights Movement....and while I've been following the protests closely from day one, I realized that I missed it.  I missed the parallels between the thousands of people who have descended on Zuccotti Park and in cities and campuses across the country and myself and the many donor-conceived adults and adoptees across the world.

So here is my stab at it.

We are the 99%.

I am a donor-conceived adult.  Only about 10% of us even know the truth of our conception, the rest will forever be living a lie to themselves and their heirs.  


Our best interests and our lives are forever tied to an unregulated multi-billion dollar industry.  We are threatened by the infertility industry and by society simply because we ask the question "who am I?".  We are brainwashed and lied to by those who should care about us the most.  Our entire lives are comprised of lies, even our birth certificates are fraudulent documents, nowhere mentioning that our biological father is a sperm donor, let alone his name.  


Clinics and doctors are legally able to destroy any and all records pertaining the the creation of us, including the identity and medical history of our biological parent.  Better records are kept of livestock than of us.  We are the most sought after human commodity in modern times, and we are the product of a financial transaction.


Countries and states across the globe are rectifying this century old status quo and stepping up against the infertility industry and demanding changes in anonymity, payment, and the treatment of the adults already conceived through "donated gametes".  Yet America refuses to listen and instead turns a blind eye to the grave injustices being played out on us in compensation for allowing an industry to function solely by its own self-set regulations that are tipped in their favor.


I work very hard but I will never have millions of dollars.  I will never have the political power that comes with this wealth and the ability to sway politicians to my point of view.  I will never have the lobbying power that is attached to the infertility industry.  


All I have is my voice.  I am the 99%.  We are the 99%.


Will you stand with me?

Quick update...hiatus and good news!!

Sorry for the recent hiatus, I promise I will be back in action later next month.  It's been a chaotic past few months (trips, weddings, interviews, and more) and I have some great news to share.

I will be moving to New York City the beginning of November to start my new job as a reference and instruction librarian at Columbia University Medical Center!  So I just decided on an apartment after spending a crazy 36-hours in the city, and I am currently in the midst of packing and will be relocating in 2 weeks.  I am excited to begin this new chapter in my life, and I have some great ideas forming for the large donor conception community in the Greater NYC area!

In other news...this coming Thursday (10/20) at 1pm EDT, I will be featured on a live chat with PBS for the upcoming premier of their new independent documentary "Donor Unknown" along with Eric Schwartzman (DI Dad) and the producer of the film, Jerry Rothwell.  Hope many of you are able to listen in and participate!  I am looking forward to see the film and how it compares to many of the other films that have discussed donor conception in the past year.

Tune-in here to participate in the chat!!!

I also have been invited to participate in what will hopefully start the discussion in the USA on regulating the infertility industry.  I can't say much about it now but I was asked to be a moderator for some serious ethical debates on the infertility industry.  This will be a multi-year process and I will update more as I am allowed.  I am honored and thrilled that I have the opportunity to speak on behalf of donor-conceived adults in a forum that will set the stage for what I hope to see as legislative change in regards to the handling and treatment of donated gamete usage in America and beyond.

The Jerry Springer complex of network television

My week/end, specifically Friday, was one of those days that you look back on and expect to wake up and realize it was all a dream and that real life couldn't possibly be that crazy!!  Alongside various family crises (death, flood, and a freak car accident), Friday literally started off with a bang that just didn't stop.  I honestly think I charged my cell phone 3 times from all the phone calls I made!

It all started Thursday afternoon, when I received a strange email from a TV producer wanting me to come on a daytime talk show - this coming Tuesday!!  My initial reaction was to ignore it - actually, my initial reaction was I thought it was a prank.  But I woke up Friday morning to see Facebook statuses from some friends across the country who had also been contacted and had agreed to go on the show!  So I thought, hmm, these are ladies I have known for many years online and we have all hoped for the opportunity to meet someday, if I agreed to go on the show I'd be able to meet them and we'd be dynamite on the show considering our opinions and what we could get across to the public!  So I call up the producer and throughout the morning/afternoon I spoke to her on several occasions.

Now, while I cannot go into details for a variety of reasons, lets just say I realized after several conversations that whether she realized it or not she was trying to exploit me for ratings.  All during this several friends who had also agreed to go on the show were waiting patiently to hear back from her about travel arrangements to NYC, which she had told them that morning to pack their bags.  My last conversations with the producer, after refusing adamantly to agree to what she wanted, ended up with her telling me she needed to discuss things with her team and she would get back to me in an hour.  I never heard back from her.  My guess is she was trying one last time to get me to change my mind, and if I did she'd scrap the others and only use me.  But since I refused it wasn't the story they wanted.

As the evening rolled on I was on the phone and texting back and forth with these several DC friends who were also supposed to be on the show.  We all assumed we had just been cut from the show since we never heard anything.  Frustrations were running high as the others have family and children to consider, and the fact that if this was still going to happen we were all to be flying to New York on Monday!!  And it was Friday night!!  I'm a spontaneous person, but this was a big deal!!  I needed to know so I could work out plans for the coming week...and of course go buy a new outfit to wear on TV!!!

Flash forward to yesterday (Saturday) morning.  One of my friends calls the producer on her cell phone because no one had heard from her after my conversation with her at 4pm...none of them had heard from her since early Friday morning.

Brief response, they taped the show last night (Friday)...when we were all waiting on pins and needles to hear back and to go through with our "pre-interviews" and get our travel arrangements sorted out.  No apology, no sorry I meant to get back to you but we were in a crunch.  Nothing.  After an email to the producer we learn that they changed topics entirely, scraping the donor conception story.  Needless to say, the lack of professionalism shown by the producer of this show and the parent network cannot be ignored.  And I am fairly confident that if this show were to contact me again in the future for a show I would politely turn them down.

But on to what this post is meant to be about...I would not turn them down purely because they cut our segment and didn't have the common courtesy to notify us - though I am miffed at the lack of consideration towards us and leaving us waiting for nothing.  No, I am most enraged by the fact that even though this is what I would consider a legitimate show, that they still stoop to the levels that many less-respected shows often are traditionally known for.

And that is using sensationalist tactics to get ratings at the expense of the individuals involved in the show.  Unfortunately this is not the first time something like this has happened, and I'm sure it won't be the last.  To Hollywood, to the television industry, we're "freaks of nature", something out of the movies or science fiction.  And apparently we must be treated as such.  While there have been many fantastic newspaper articles and even some television programs that have discussed donor conception, the majority of them, especially television/movies, seem to put us in the same category as reality stars, elephant man, and conjoined twins.  They have learned that America is a society that thrives on being exposed to individuals lives that are completely outside the realm of their own boring existence.

And for good reason.  The concept of being conceived in a doctor's office in a sterile clinical setting and having no knowledge of half of your identity is not something that the majority of people can relate to.  And with the disgusting irresponsibility of the infertility industry in the past 20+ years, we have become even more of a freak show, with stories of donors fathering hundreds of children, the idea of two siblings unknowingly meeting and entering into romantic relationships with one another, and children having get togethers with dozens, if not hundreds of siblings, entering the media.  And while part of me understands and acknowledges that without this media our plight would not be heard and society would not see the damages being done.  At the same time, rarely is our story taken for what it is, it's made out to be something that it is not.  If anything, the media is not interested in the actual issues.  All they care about is how many people are watching their show, reading their paper, listening to their news broadcast.

So where does that leave us?  Being exploited by two industries.  We have from day one been exploited by the infertility industry, in terms of their multi-billion dollar profits and putting us in a position where we have become mere commodities, mere transactions between two consenting parties who do not have OUR best interests at heart.  And today we are now being exploited by the media, time and time again.

They see us as one of two things.  Either that happy ending story that everyone cries and thinks that everything is perfect and beautiful.  Or the tragedy story that often takes the spin that we are a bunch of whiny brats complaining about life's injustices when we are living our white middle class suburban lives.  In the first, and more common, example, they only show the good things.  The reunion of half siblings, the former donor and his/her child meeting for the first time.  What is not shown is the emotional implications associated with both of these events, that often carry on for years.  These stories also give the false illusion that anyone who wants to find a sibling or their biological parent can do so.  Which in reality is so far from the truth.

But what about those individuals who have their private lives documented?  The two siblings who have their reunion filmed for the entire world?  I hate to break it to you but the media doesn't really care about reuniting lost siblings.  All they care about it the chick-flick appeals of the story for the audience.  The reunion is likely terribly staged, and god-forbid nobody cries.  They'll make you cry, just for ratings!!  And you better look alike too, otherwise it's not as surreal and awe-inspiring that these two individuals have lived their entire lives unbeknownst to each others existence.

The complex and emotional journeys of these reunions are never documented.  Perhaps it would show that these experiences are not just the perfect fairytale ending.  That there is pain and anger and confusion.  And that it's no an instantaneous happy life from that point on.  And that sometimes these things don't always end like we hope.

The good news is there has been some good opportunities for the media to portray our stories fairly and accurately to a broad audience, and I thank those journalists, producers, and organizations for taking the time and energy to produce something worthwhile that truly captivates the complexities at stake with consideration and respect for those of us living through this seemingly unimaginable predicament.  I hope that in the coming months and years that there will be more of these stories that come to light and less of the superficial and exploitative outlets that often are produced.

NYT: One Sperm Donor, 150 Offspring

Just because this article hasn't gone viral enough yet.....

One Sperm Donor, 150 Offspring

OFFSPRING, Ryan Kramer, of Pasadena, CA is the child of a donor

By JACQUELINE MROZ

Published: September 5, 2011

Cynthia Daily and her partner used a sperm donor to conceive a baby seven years ago, and they hoped that one day their son would get to know some of his half siblings — an extended family of sorts for modern times.

So Ms. Daily searched a Web-based registry for other children fathered by the same donor and helped to create an online group to track them. Over the years, she watched the number of children in her son’s group grow.

And grow.

Today there are 150 children, all conceived with sperm from one donor, in this group of half siblings, and more are on the way. “It’s wild when we see them all together — they all look alike,” said Ms. Daily, 48, a social worker in the Washington area who sometimes vacations with other families in her son’s group.

As more women choose to have babies on their own, and the number of children born through artificial insemination increases, outsize groups of donor siblings are starting to appear. While Ms. Daily’s group is among the largest, many others comprising 50 or more half siblings are cropping up on Web sites and in chat groups, where sperm donors are tagged with unique identifying numbers.

Now, there is growing concern among parents, donors and medical experts about potential negative consequences of having so many children fathered by the same donors, including the possibility that genes for rare diseases could be spread more widely through the population. Some experts are even calling attention to the increased odds of accidental incest between half sisters and half brothers, who often live close to one another.

[read more]

The DNA numbers game

A recent discussion on PCVAI was about shared DNA, and how much is significant and what all those numbers actually mean.  I've also come across several discussions on various DNA message boards with similar questions and confusions.  So I figured I would reiterate some things here.  Some of this is my own meanderings.  Some of this is credited to various members of different forums and listservs.

FTDNA versus 23andMe: Shared DNA

A. FTDNA's Family Finder test providers testers with the amount of shared DNA for EVERY one of their matches no matter how immediate or distant they are.

This shared DNA is broken down into 3 categories.

1) Sum shared DNA
The sum of shared DNA is the total number of cM (centimorgans) you and a match share across your entire autosomal genome.  The total number of cM is approximately 3380cM.  Sum shared DNA is typically used for determining close and immediate relationships.

• A parent-child match will share around 3380cM.  This is slightly misleading because of course a parent and a child only share 50% of their DNA - the other 50% comes from the other parent.  But since this test does not differentiate both pairs of each chromosome, a parent and child will share a SNP at every marker.  This is called a half-match.  
• Identical twins will also share 3380cM according to the FF results, but since they share 100% of their DNA, those 3380cM will be a full-match - that is, both SNPs at each marker will match compared to only a single SNP between a parent and child.  
• Now full-siblings, even though they share 50% of their DNA (same as a parent-child), because each child may have inherited opposite SNPs from each parent at any given marker, full-siblings will generally share less than 3380cM but no less than 2500cM.
• Half-siblings share 25% of their DNA, but like full-siblings it's not going to be exact because the siblings may have inherited opposite SNPs from their shared parent.  But the shared DNA for half-siblings should be around 1690cM, and probably no less than 1000cM.

According to Matt Dexter, on the FTDNA Forum, here is a breakdown of sum shared DNA ranges for various relationships:

• Parent/child: 3539-3748 centimorgans (cMs)  
• 1st cousins: 548-1034 cMs  
• 1st cousins once removed: 248-638 cMs 
• 2nd cousins: 101-378 cMs
• 2nd cousins once removed: 43-191 cMs 
• 3rd cousins: 43-ca 150 cMs
• 3rd cousins once removed: 11.5-99 cMs 
• 4th and more distant cousins: 5-ca 50 cMs

He also provided this great spreadsheet of min and max numbers:

Lastly, it must be noted that usually anything less than 5cM is considered noise.  Between 5-10cM suggested possible recent shared ancestry.  Over 10cM strongly suggests recent shared ancestry.

2) Longest block of DNA
The longest block of DNA is another tool used primarily for determining more distant relationships.

An explanation of the differences between sum and longest block of DNA from Matt Dexter (FTDNA Forum):

The amount shared is less important for a 4th cousin than for a 1st cousin. The amount shared in a first cousin is a large quantity so it can be used to make a prediction. The amount shared in a 4th cousin is a smaller quantity so it is easier for the test to use the longest block to make a prediction from and then use the sum as a kind of secondary, fine tuning adjustment.
Immediate family have longest blocks however they can't be used because they are different sizes per chromosome. In other words a match on chromosome 1 might override a bigger match on chromosome 3 because chromosome 1 is larger in cM. A parent and child will have the longest block on chromosome 1 for just about 145.17cM but the fact is, all the other chromosomes match too so using the longest block is meaningless for parents, uncles, aunts, nieces, nephews, grandchildren and grandparents for example.

And from Tim Janzen on the Genealogy-DNA listserv (http://archiver.rootsweb.ancestry.com/th/read/GENEALOGY-DNA/2011-04/1302395962):

Ranges of the length of shared IBD segments based on family relationship:

• Parent/child: 2851st cousins: 50-141   
• 1st cousins once removed: 36-106 cMs 
• 2nd cousins: 21-64 cMs 
• 2nd cousins once removed: 19-81  
• 3rd cousins: 13-77  
• 3rd cousins once removed: 0-27 
• 4th cousins: 0-22  
• 4th cousins once removed: 0-13 
• 5th cousins: 0-27

3) Number of segments
The number of segments is not very important, as of course large segments take up more space so immediate relatives will share less numbers of segments but longer segments.  The number of segments feature is more useful when looking at more distant relationships, especially where there might only be one significant block of DNA shared.


B. 23andMe's Relative Finder uses shared DNA as well.  However, their results are slightly different from FTDNA.  First off, only those who have set their profile to public will you see their names (I've discussed this previously).  Second, if you have an immediate relative match (parent-child, sibling, grandparent-grandchild, niece/nephew-aunt/uncle, and possibly 1st cousin - I'm not 100% sure on the 1st cousin), those matches will NOT SHOW UP unless that match has signed off to be visible to immediate matches.  Why this is, I have no clue.  But it's something I was informed of recently from other DC adults who have tested with 23andMe.

Shared DNA from 23andMe is listed in percentages.  Which for most people is more understandable, but unclear if you are trying to compare the two companies.  Since percentages for two related individuals are fairly contant, it needs little extra information.

DNA Percentages (http://www.isogg.org/wiki/Autosomal_DNA_statistics)

The following figures show the average amount of autosomal DNA shared with close relatives:

• 50% mother, father and siblings
• 25% grandfathers, grandmothers, aunts, uncles, half-siblings, double first cousins
• 12.5% first cousins
• 6.25% first cousins once removed
• 3.125% second cousins, first cousins twice removed
• 0.781% third cousins
• 0.195% fourth cousins
• 0.0488% fifth cousins
• 0.0122% sixth cousins
• 0.00305% seventh cousins (ca 92,000 base pairs)
• 0.000763% eighth cousins (ca 23,000 base pairs)

Of course these numbers can fluctuate slightly due to the randomness of inheritance.

Here are ranges of percentages of genome in common from 23andMe:

• Parent/child: 47.54 (for father/son pairs, who do not share the X chromosome) to ~50%
• 1st cousins: 7.31-13.8
• 1st cousins once removed: 3.3-8.51
• 2nd cousins: 2.85-5.04
• 2nd cousins once removed: .57-2.54
• 3rd cousins: ca .3-2.0
• 3rd cousins once removed: .11-1.32
• 4th and more distant cousins: .07-.5

And just for comparison, here's a breakdown of just how much DNA is shared between UNRELATED people:

• Parent-child pairs share between 83.94% and 84.20% of SNPs (50% of DNA in common)
• Siblings share between 83.81% and 87.47% of SNPs (50% of DNA in common)
• Uncle/aunt-niece/nephew pairs share between 78.48% and 79.57% of SNPs (25% of DNA in common)
• Grandparent-grandchild pairs share between 77.96% and 80.59% of SNPs (12.5% of DNA in common)
• First cousins and great uncle/great aunt-grandniece/grandnephew pairs share 75.78% and 77.03% of SNPs (12.5% of DNA in common)
• First cousins once removed share ca 75.5% of SNPs (6.25% of DNA in common)
• Second cousins and first cousins twice removed share ca 75% of SNPs (3.125% of DNA in common)
• Unrelated people of European descent share 73-74.6% of SNPs

Got a cousin match...now what?!

I know I've blogged about this repeatedly this summer, but I'm going to once again sound like a broken record and return to discussing the Family Finder test through Family Tree DNA.  Because I am just that confident in its potential for donor conceived people.

I promised I would do a post on matches a while ago, so here it is!

FTDNA's Family Finder test can identify close and immediate relatives back approximately 5 generations.  That is, a relative that shares a common ancestor with you almost certainly in the past 200 years (versus Y-STR and mtDNA tests whose matches may be a common ancestor from 500+ or even thousands of years ago!!).  Here's a few more points about matches and relatedness:

• It can also identify distant relatives (more than 5 generations back), but these are only speculative and should not be relied upon.  
• Very close and immediate relationships can be confirmed/identified with 99.99% accuracy.  If a half-sibling, your bio father, grandparent, aunt/uncle, or any 1st or 2nd cousins test, you will be matched with them 100% of the time and the suggested relationship will help you to accurately identify how they are related to you.  
• More distant close cousins (3rd) and distant cousins (4th and up) may or may not match with you.  3rd cousins will match with you 90% of the time.  That means if 100 of your 3rd cousins test 90 of them will show up as matches, but 10 of them will not.  This is simply do to random inheritance and 3rd cousins only share 0.78% of their DNA (1/16 gg-grandparents), so not every set of 3rd cousins will have inherited enough of the same bits of DNA from their common ancestor (gg-grandparent) to show up as matches.  4th cousins will only match 50% of the time, and 5th cousins and beyond even less.  So obviously the test has limits, but the chances of finding a 4th or 5th cousin who has any idea how you are related let alone who your bio father is is about as likely as finding a needle in a haystack!!
• As I've mentioned before, if you're Generation X or Y, chances are most of your matches are at least a generation or two older than you, so if the suggested relationship is 3rd cousin it's possible you are actually 2nd cousins once removed...that is instead of both of you sharing a common gg-grandparent, it might be your match's g-grandparent and your gg-grandparent.  This is just something to keep in mind for both you and your matches.  

Once your test is completed, your results will be returned to you and you will be able to access your list of matches...any relative that shares enough DNA with you to be considered a match who has also signed their release form.  All of your matches will list a relationship range as well as the amount of shared DNA.  Close and immediate matches will also list a suggested relationship (that should only be used as a guide to establish where the connection might lie).  For some matches they might have also added surnames known in their family tree and a few might even have their family trees (GEDCOMs) available on FTDNA.

The good news is, even if you do not have many matches when you first get your results, or you do not have any close (3rd cousins or closer) matches, do not fear, as more and more people test you will get more and more matches.  This is definitely a plus of FTDNA, in that there is no subscription so you will receive new matches indefinitely.

Now ideally, matching with a very close or immediate relative is the best - duh.  In this case you will almost certainly be able to identify your bio father (unless it's a DC half-sibling, adoptee, or some other "non-paternal event").  But most likely you're going to get matches in the 2nd, 3rd, and 4th cousin range.  I'm going to focus from now on on 3rd cousins since these seem to be the most common close matches that appear.  From here on out I'm also going to assume that these are paternal cousins and not maternal.  I've discussed this in the past, and still strongly suggest to have a maternal relative (sibling with a different donor, mother, aunt/uncle, grandparent) tested to help separate maternal and paternal matches.


Hypothetical situation: So you have a bunch of matches and hypothetically your top 3 matches all have a relationship range of 2nd-4th cousin with a suggested relationship of 3rd cousin.  What do you do now?  

1. The first thing you should do is look if they have surnames listed.  Are there any names in common?  If so this might show that these two (or however many) may be related to you on the same line/branch.

2. Go to the Chromosome Browser (link in left column under Illumina OmniExpress) and check off all 3 of these top matches.  Set the threshold to 5+cM.  Where are the shared segments of DNA between you and these 3 matches?  Are there any areas that have overlapping segments?  If so, this is another avenue to determine if these matches are all on the same line/branch.  Also play around with all 3 of these matches and see if there are any of these matches that have overlapping segments with any of your matches.  The main reason for this is to help your matches to narrow down how you might be related to them, if there are common matches between you.

NOTE: You may or may not have received any emails from your matches.

3. Now is the time, if you have not been contacted yet by matches, to go forward with initiating contact.  You will have your matches names and email addresses provided.  My personal suggestion for initial contact with matches is to be vague but don't lie.  Unfortunately there are some people involved in genealogy who may not feel comfortable sharing information with someone who is adopted or donor-conceived.  Luckily this seems to be a rarity, as genealogists are in the "business" of finding family!!  However, while many genealogists have come across adoptees searching, many have not had experience interacting with donor-conceived people, and as with the rest of society, there is a prevailing attitude and stigma set on us.

Here is an example of an email to send to new matches:

Dear __________,
I just received my Family Finder results and we were listed as suggested 3rd cousins.  I believe our connection must be on my paternal side.  I have very little genealogical information on my paternal family so I'd be grateful for any information you might have.
Thanks,
________________

Some might assume you are adopted at this point - again, many genealogists have come into contact with adoptees.  If they think you're adopted and are not refusing to provide information you're probably safe to correct them and disclose.  As you correspond with these matches you can "come clean" about being donor conceived when it feels right.

4a. If you made it to this point positively your match responded to your email and you're on your way to getting to know your family (even if it is distant) and perhaps gain more knowledge or direction towards your bio father's identity.  You might be amazed at the incredible wealth of information you matches have, and many, even if they are unable to identify who your bio father is, are more than willing to accept you as family and help you as best they can.

4b. If your match did not respond, or refuses communication, all is not lost.  Unlike 23andMe (with which if a match doesn't respond you're up a creek without a paddle because you don't have a name or any information on your match and his/her family), FTDNA provides the name, email address, and if the match submitted ancestral surnames and/or GEDCOMs.  With this information at least you have a name and some information so you can research that person and his/her family on your own to try and gather more about their family.  A great place after a basic Google search (some people have public family trees up on the WWW) is Ancestry.com.  You can get a free trial subscription for 2-weeks, and can pay for a single month or up to a year subscription (though it's cheaper in the long-run to pay for the year subscription).  Not only are there millions of genealogical records (church, local government, family, etc), census records, newspapers, public records (very useful if you have a DOB and a location or possible surname), and more, but there are also millions of public family trees created by Ancestry members.  Since FTDNA is geared towards genealogists, many of your matches may have a family tree posted publicly on Ancestry.com (or other websites such as MyHeritage.com), and if you can find it you can at least see the family tree (minus any living members).  This isn't going to give you your bio father's name (unless you're an older offspring and you believe he's likely deceased), but it might point you in some directions.

5. Join projects....and/or get involved.  If one of your matches has a family group, they may invite you to join.  This can either be something like a FTDNA official project, or a private group/listserv.  Even if your matches don't have information, their family members might!!  I know this to be the case just in my mother's family with regards to very recent family history - sometimes one sibling or one branch of the family has some bit of knowledge that was for some unknown reason never passed on to the others.  So it's possible that someone else might just have a little golden nugget of information.

6. And last but not least, remember as you start this journey...these matches are your family.  Worst case scenario is you will not gain any further information about your bio father from this test.  But while that technically can happen, do not pass over one of the most important aspects of this test.  You have found your family.  They may not be your bio father, or even know your bio father, but they are your kin.  Savor the opportunity to get to know your bio father's family and learn more about yourself in the process.

The pink elephant in the room

I am a failure of the infertility industry.  Why?  Because I was told I was donor-conceived.  The philosophy of ART invented by the infertility industry is one of secrecy.  Intending parents go to some infertility specialist and he "cures" them of their infertility and instructs them to go home, make love, and forget their visit to his office ever happened.  

The problem with this philosophy is that as human beings, we have the capacity to remember.  Intending parents cannot forget this procedure, and for some it consumes them.  Hiding this shameful secret destroys them from the inside out.  For some the only solution was telling their child (often an adult by this point) the shameful secret.  Many recipient mothers disclosed this secret discreetly, not telling their husband.  Even more offspring are instructed directly or indirectly that it was not something to be shared outside of their immediate family, often keeping it from extended relatives such as grandparents, aunts, uncles, and cousins.  Often there is a subliminal message that this is something to be ashamed about and should not be talked about in public.

Therefore, the secrecy and shame has now been transferred from parent to child.

For children conceived in "alternative" families....same-sex couples or single parents, the conception story is often much more public, sometimes to the extent that the child is bombarded with the facts of their conception broadcast to the wider community.  In this instance, the opposite is the case.  The child is unable to conceal this fact to the world and are often put on a pedestal as a symbol of the rights movement and not given his or her proper space to conceptualize and comprehend their story.

Thus, the opinions and expectations have now been transfered from parent to child.

Whichever the case, donor-conceived individuals often find themselves in this twilight zone of sorts, trying to not only deal with their conception but how it is viewed by the rest of society, as well as by their own families.

For many of us, donor conception really is the elephant in the room, the truth that we know and will never forget, but that we find difficult to discuss in public and therefore attempt to ignore, despite it being impossible.

For most recipient parents, their biggest hurdle is disclosure.  There are entire message boards dedicated to it, entire books and seminars discussing it.  To them it's this huge dilemma.  How on earth am I going to explain this to my child?!?  And while it might be hard, it might be uncomfortable, it might be painful, you're talking to your child about their conception.  They have a right to know the truth about their own identity.

What most parents forget is that they have it easy.  We have it hard.  We have to live for the rest of our lives with this knowledge that is directly tied to us.  Our parents don't need to tell everyone that their child is conceived with a donor (some do, but that's a whole other story that follows along with my previous comment about turning their child into some reproductive rights symbol....).  However, for us, each time we meet someone new we find ourselves in the same situation.  Do we tell this person?  And if so, HOW?

Most people get uncomfortable when they hear words like sperm, egg, conception, etc.  So needless to say, disclosing being donor-conceived to someone is usually the most difficult and awkward conversation we will have.  We all take a variety of paths to disclosure.  Often it depends on the person or the circumstance.

Sometimes it's like pulling off a band-aid or jumping in freezing cold water.  Quick and painful, but once it's done it's done.  Other times it's like a well-rehearsed waltz.  Careful planning and practice to make everything perfect so it is smooth and effortless.  There's also the drunken stupor disclosure, that usually follows a night of heavy partying and that pesky sentimental euphoria that accompanies it.  I don't advocate the last course of action, as there is the significant chance that neither you or the other person will remember the disclosure in the morning.

But lets go back to family.  Because for many of us, due to the secrecy and shame that our parents pushed on us when they disclosed our conception, discussing donor-conception with them can be awkward at best, and terrifying at worst.

Sometimes discussing it, especially with social fathers, makes us feel as though we are being disrespectful and/or hurting our parents.  Again, why must we hold our parents emotional wellbeing higher than our own?!?  So many of us are silent to our families about our feelings and our journeys.  Mostly because once disclosure occurred, it was assumed that everything would magically go back to the way it was.  But it can't.  It never can.

For me, donor conception is like this haunting feeling in the back of my mind, in the pit of my stomach.  There are times when I don't think about it definitely.  But I don't forget.  It's always there.  It's the elephant in the room, that everyone knows but no one wants to discuss.  And that is a very isolating feeling.

Official Release: Donor Conceived DNA Project!!

I am excited to announce the creation of the first and only worldwide DNA project for donor-conceived adults and former/current donors through Family Tree DNA.  

Project website: Donor Conceived DNA Project 

The main goals of the project will be as follows:

1. A central location for donor-conceived individuals to locate half-siblings
2. A central location for former and current donors to locate their biological children

Other goals of the project are to provide awareness to donor-conceived adults, former/current donors, and parents of donor-conceived children to the benefits and successes of using DNA tests to identify not only half-siblings but to give direction to the identity of the biological parent, and to analyze the DNA of donor-conceived adults in an anthropological light.

Benefits of joining the project are:

1. A place to direct potential half-siblings to without dealing with costly and ineffective and inconclusive half-siblingship DNA tests using CODIS markers
2. Ability to have expert advice on interpreting results and assistance on using results to identify potential biological parents
3. Opportunity to be involved in a revolutionary project that can confirm donor relationships without the use of donor numbers, mother's DNA, or costly registries
4. Opportunity to identify donor-conceived adult relatives beyond half-siblings (such as cousins)

Benefits for the donor conception community as a whole:

1. Identify DNA trends among donor-conceived adults
2. Identify relative groups who all acted as donors (such as fathers and sons or brothers)
3. Identify donors who may have donated at multiple locations with different donor numbers
4. Identify significant age gaps in donor-conceived half-siblings from the same donor

Tests currently accepted:

1. FTDNA's Family Finder autosomal test (for males and females to identify genetic relatives on all lines including paternal cousins and male and female half-siblings)
2. FTDNA and any compatible 3rd party company's Y-STR tests (for males only to identify genetic relatives from the direct paternal line...useful in identifying possible surnames of biological father and confirming only male half-siblings)

YOU MUST ORDER (or already have done) A DNA TEST TO PARTICIPATE IN THIS PROJECT!!!

FTDNA's Family Finder test: $289 (PREFERRED)

FTDNA's Y-STR tests: starting at $169

Disclaimer for minors:

Parents of donor-conceived children are advised to make sure that your child is of an age to consent to having his or her DNA swabbed and added to the FTDNA database as well as this project.  I strongly suggest minor children be at least 13 years of age.

Upon requesting to join you will be asked to answer the following questions

Name:

DNA tests ordered:

Offspring or donor:

Year of conception or years donated:

Sperm bank or clinic where donor donated (if known):

Doctor that performed the insemination (if known):

Place of conception:

Donor number (if known):

Siblings (if any) - please note if any siblings have done DNA tests and what tests:

Please email me with questions or concerns about these tests or the project.

Feel free to repost this announcement to other DC groups.

Lindsay Greenawalt

Group Administrator

Donor Conceived DNA Project

http://www.familytreedna.com/public/donor_conceived/default.aspx

Rhode Island is #7: Unconditional Access to OBCs....and hope for donor conceived offspring??

From Bastardette: Yesterday was a celebratory day for the Adoptees Rights Movement.  Rhode Island became the 7th state to provide unrestricted access to Original Birth Certificates for ALL adoptees born in the state.  S478 Sub AA was signed into law yesterday at noon.  The law will go into effect on July 1, 2012.

However, in the donor conception world equal rights are still decades behind.

With the recent appeals upset by the state in Olivia Pratten's groundbreaking court case in British Columbia, she has another battle to fight to gain rights for donor conceived adults in Canada.  The good news is, since the appeal will go to the Supreme Court of Canada, IF (and only if) she wins, donor anonymity will be removed in not just BC but every province in Canada!!  While the appeal after such a successful win must be devastating to Olivia and her family and her attorneys, if they can convince the SCC of the unconstitutionality of destroying records and denying donor conceived adults from learning the identities of their biological parents, then the ramifications would set in motion a hard precedent for other states and governments to deny.

Here in the good ol' USA, the first tiny baby step in reform is beginning to brew.  On the weekend of Independence Day, there is a tiny glimmer of hope, that human rights, children's rights, Americans' rights will prevail over greedy corporations and money.

The Governor of the state of Washington recently signed into law the Uniform Parentage Act that, effective July 22, 2011, demands that anyone who provides sperm or eggs to a fertility clinic must also provide identifying information and a medical history, and that children born from these donated gametes can return to the fertility clinic at age 18 to request this identifying information and medical history.

However, as is the case in many adoptee OBC bills that spring up across the country, there's a catch.

A veto.

Unfortunately Washington was too scared of the potential loss of donors, so they added a cop-out.  Donors can file a disclosure veto that prevents the clinic from revealing identifying information (not medical history) to their biological children.

While I am saddened by the apparent cowardice in giving donor conceived offspring actual human rights against the threats and interests of the infertility industry and the ASRM, this is definitely a step in the right direction.

I hope in the future there will be as many vocal  donor conceived adults as adult adoptees, and legislation like this will be discussed and voted upon in many states, and that compromises like disclosure vetos will be fought against.

But in the meantime, baby steps, we're taking baby steps here.

What do my Family Finder test results mean?

A slight oversight on my part, I realize that I never did the post that I initially wanted to do for my series on FTDNA's Family Finder test, and that is what information do you get from this test and what does it all mean?

What is the Family Finder test?
Family Finder (FF) is a product from Family Tree DNA that can identify genetic relatives both close and distant up to 5 generations.  The test uses autosomal DNA (Chromosomes 1-22) and the X chromosome to identify regions of your DNA that are "Identical By Descent" (IBD) with other members of the database.  Based on the amount of IBD (as opposed to "Identical By State" (IBS), which is DNA shared between two people that is coincidental) DNA shared between two individuals the algorithms created by FTDNA can determine a relationship range as well as in close genetic relatives, a suggested relationship.


What information do I get from this test?
Personalized website: MyFTDNA
After you order a kit, once it's mailed to you and you swab your cheeks and return the kit to FTDNA, you will get a confirmation email that will identify your Kit # and password.  Then you log into MyFTDNA with your kit # and password and you will be brought to your homepage where once your results come in this will be where everything will be located.

This is what my MyFTDNA homepage currently looks like with my FF results back.

When you first get your kit back you will need to go to where it says "Pending Lab Results" (marked in green). This will tell you what batch # you are in and when your results are expected back.

Once your results are returned the heading (marked in blue) where it says "Family Finder Illumina OmniExpress" will have listed the following tabs (click to take you to that section of this post):

Matches

Chromosome Browser

Known Relationships

Population Finder

Download Raw Data

These are the tools that you're going to use to identify your paternal relatives and possibly your biological father.


Matches
Obviously your matches are the most important aspect of this test, but in order to gain the most from them I'm going to explain a few things.

When you first get your results and you click on "Matches" you will be brought to a page that looks like this:


This is a list of your genetic relatives.  However, the default of what is shown is only your close and immediate genetic relatives.  If you do not have any make sure you change the "Relation" bar to include ALL MATCHES.

My close matches take up 2 pages, and all my matches take up 7 pages (I have 12 close matches and 66 total matches).

What you see here is the name of your genetic cousins and the following pieces of information.
Relationship range - this is a range based on FTDNA's algorithms that determines about how close or distant they believe you and this person to be based on the amount of shared DNA.
Suggested relationship - this is again, based on the algorithm devised by FTDNA and is the "most likely" relationship based on DNA. Only close and immediate relatives have a suggested relationship.
Shared cM - cM is "centimorgans" and it's the standard measurement of distance for DNA.  It's actually the recombinant frequency, so if 1cM corresponds to 1 million base pairs, that means that if two markers or SNPs in the genome are 1cM apart, there is a 1% chance of them being separated through crossing-over in a single generation.  So the more shared cM's two people have means they are more likely to be closer related.
Longest block - Again based on cM, while the Shared cM looks at the total amount of shared DNA across the genome, the Longest Block looks at the longest stretch of shared DNA in a row.  Obviously, a long stretch of identical alleles between two individuals suggests that they are very closely related.
Ancestral Surnames - This is a SELF-REPORTED list of surnames that they know are a part of their family (though due to non-parental events - infidelity, secret adoption, donor conception, etc - these are not always accurate).  However,  this will give you an idea as to the potential surnames of your biological father, his possible ethnic groups, and the location(s) that his family may live or have lived.

NOTE ABOUT SUGGESTED RELATIONSHIPS:
It came to my attention after I got my results and started talking to my matches (it never dawned on me before), that the majority of people who order genealogical DNA tests tend to be older (Boomers and up), because they tend to be the ones with the time on their hands to be doing hardcore genealogy research, and have the money to spend on such tests.  However, many donor-conceived adults who are thinking about or have already ordered this test tend to be younger (Boomers and down) than the average genealogist on FTDNA.  So the suggested relationships for those of us who identify as Gen X or Gen Y is going to be skewed.  For example, my #1 match had a relationship range of 1st to 3rd cousin and a suggested relationship of 2nd cousin.  But he is an older gentleman, likely in my grandmother's generation.  So while FTDNA suggests we are 2nd cousins, it is unable to take into account that there is a 2 generation gap between us, so we are probably "closer" cousins than that.  Turns out we are actually 1st cousins 2x removed.  But the algorithms cannot differentiate that.  So just FYI, if your matches are significantly older than you are, it's possible that the most recent common ancestor (MRCA) is not, for example suggested 2nd cousins, your g-grandparents.  In my example, our MRCA is his grandfather, but my gg-grandfather, thus 1st cousins 2x removed.


Chromosome Browser
This is a tool where you can select up to 5 of your matches and see where on the genome you have shared DNA.  This is especially helpful if you want to see perhaps if one of your matches might also be related to another one of your matches.  Though remember, if you all share the same segment of DNA with two different matches it's highly likely that all 3 of you are related, but if there is no shared DNA between the 3 of you it does not suggest that you are NOT all related.


Known Relationships
The KR tab is really sort of a crappy tool.  It's something that honestly should be available for all of your matches, but has been relegated to only those with whom you supposedly can identify with a paper trail. What it does is that for matches that you identify as a "known relationship", you are then able to see what matches you have in common.  Ironically, this feature is available on the free GEDMatch program (but the downfall is that it's much less accurate).


Population Finder

The PF tool is still in beta, but for those of us who are donor-conceived, it might be the best chance we have at determining a general locale that our biological father's ancestry might lie.

As you can see at the left, this is my PF results.  They are as accurate as they could be with the very limited reference samples that FTDNA uses.  Here is a list of their sample set.  As you can see there are only a handful of different ethnic groups for each large population.


The European population set is:
Northern European (Finnish and Russian)
Southeast European (Romanian)
Southern European (Italian, Sardinian, and Tuscan)
Western European (Basque, French, Orcadian, Spanish)

Obviously there are some really huge ethnic groups missing just in Western Europe, not to mention the rest of the continent and all the other population groups!!  What this means is that your PF results are going to take your data and match it to the closest continent(s) and population(s) as possible, but they do not mean that those are your ethnic groups.  Obviously I have no French ancestry, yet PF says I'm 72.4% Western European with French and Orcadian (the Orkney Islands are a part of Scotland).  I'm also a quarter Armenian, yet my Middle Eastern results (27.6%) came up as Iranian (right next door), Adygei (a Caucasus people near Russia - Armenians are also a part of the Caucasus population), and Druze (an eclectic religious sect thats beliefs are a combination of all the Abrahamic religions (Judaism, Christianity, and Islam) found throughout the Levant, mostly Syria, Lebanon, and Israel - not really sure about this one, but same region thus probably similar DNA).

Bottom line, the ethnic groups that I belong to are not population groups that are used in this sample set, so they picked ones that most closely resemble my true ethnic heritage.

My suggestion if you want more accurate ethnic breakdowns, after you get your results email your raw data to Dr. McDonald.  His population sets are much larger and more inclusive and he will give you a much more definite idea as to your ethnic makeup.  Dr. McDonald's analysis of my DNA was pretty much dead on.

Here's what he said about my ancestry:

Most likely fit is 70.5% (± 3.8%) Europe (all Western Europe) and 29.5% (± 3.8%) Mideast (various subcontinents).

The following are possible population sets and their fractions, most likely at the top:

English= 0.677 Armenian= 0.323 

French= 0.768  Iranian= 0.232 

French= 0.726 Georgian= 0.274 

French= 0.696   Adygei= 0.304 

English= 0.660 Georgian= 0.340 

These are in fact exactly what I would expect given what you say. 

Czech comes out an (English or French)/(Armenian or Georgian) mix or an English/Romanian. Thus its no surprise that English-Armenian fits best. 

The Mideast on the chromosomes is very weak indeed, very close to Europe, as befits just a little Armenian, which itself is rather European.

 I'm going to do a post in the near future just on McDonald analysis, so stay tuned for more information about what Principle Component Analysis is and what information you get from Dr. McDonald.


Download Raw Data

Fairly self-explanatory.  You can download your raw data and then use it in some of the programs and tools I talked about last week.

***************************

I will continue this series with more information and advice on how to use your FF results to best of your advantage, including how to best contact matches, how to gain information from matches that don't respond, and more!